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What Patient Advocacy Means to Us
Issue #51 of “What’s Her Problem?”: A conversation with Chris B. Writes about our unexpected journeys to becoming patient advocates.
Aug 21
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Debra Rafson
and
Chris B. Writes
17
19
6
Upon Review, I am Still Disabled
Issue #49 of "What's Her Problem?": The nerve-wracking process of undergoing a Continuing Disability Review by the Social Security Administration.
Aug 7
•
Debra Rafson
8
11
4
Answering Reader Questions
Issue #48 of "What's Her Problem?": Celebrating one year on Substack by responding to my “Ask Me Anything” inbox.
Jul 31
•
Debra Rafson
9
10
4
Is Accessible Parking Really Accessible?
Issue #47 of "What's Her Problem?": The ADA codified parameters for accessible parking in 1990 and revised them in 2010. Is it time to update the rules…
Jul 24
•
Debra Rafson
9
12
5
The Trouble with Doors
Issue #46 of "What's Her Problem?": Accessibility challenges come in all forms, even structures that seem innocuous.
Jul 17
•
Debra Rafson
9
5
6
How to Buy an Accessible Vehicle
Issue #45 of "What's Her Problem?": Finding and adapting a vehicle that met my disability needs was a 5-step process.
Jul 10
•
Debra Rafson
6
9
5
A New Diagnosis is Like Learning a New Language
Issue #44 of “What’s Her Problem?”: To become fluent in your medical diagnosis, you need to start with the basics and keep studying.
Jun 19
•
Debra Rafson
7
7
6
How I Learned to Drive Again
Issue #43 of “What’s Her Problem?”: When illness takes away our independence, sometimes we can regain a different version of it.
Jun 12
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Debra Rafson
4
5
9
A Letter to My Late Physical Therapist
Issue #42 of “What’s Her Problem?”: Mourning the loss of a treasured member of my medical care team and celebrating her lasting impact.
Jun 5
•
Debra Rafson
8
5
9
Back in "The Pitt"
Issue #37 of “What’s Her Problem?”: A second season of excellent storytelling, bringing awareness to major issues in the U.S. health care system.
Apr 24
•
Debra Rafson
3
5
5
Adventures in Event Venue Accessibility
Issue #35 of “What’s Her Problem?”: Attending events can become complicated with chronic illness and/or disability.
Apr 10
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Debra Rafson
5
6
6
Five Times Strangers Commented on My Disability
Issue #34 of “What’s Her Problem?”: Visible disabilities seem to give people license to think they can ask questions or remark on them.
Apr 3
•
Debra Rafson
9
14
7
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